Once we took you home with us you began crying for hours and hours everyday. We were so worried that you were trying to tell us you were in pain. The doctor’s started by trying to feed you differently, first by placing a tube down your nose and then when you were a little over a year old they decided that they needed to put in a special tube that led directly into your stomach called a G-tube. This way we could make sure that you were getting enough food. But even after we put in the g-tube there were other things that made us scared. You still weren’t gaining weight and you were not doing some of the things that little babies do like: crawl, turn over or stand. We also noticed that you couldn’t see things. You never reached for toys and the only thing that comforted you was being held. So we never put you down.